Thanks to the dedication of a whole range of organisations and medical professionals, Martinho now has a new lease on life.
A holistic approach to care
Craniofacial surgeon, Mark Moore, has met quite a few children like eight-year-old Martinho Ronaldo during his years of volunteering in clinics in Timor-Leste (formerly East Timor) and neighbouring Indonesian provinces.
Martinho was born with a condition called a frontoethomoidal encephalocele, which is a herniation of brain tissue and fluid from around the brain. This condition occurs throughout South-East Asia and its cause is unknown. It results in a large protrusion through a hole in the bone of the forehead, between the eyes.
“It was clear that Martinho would be an excellent candidate for surgery with our craniofacial team here at the Women’s and Children’s Hospital in Adelaide. The operation he needed could not have been performed in Timor-Leste and after assessing him, I was confident that he would be able to live a normal life post-surgery,” said Mark.
A life-changing journey
Funded by the South Australian Government and Children First, Martinho and his mother, Elsa Sanchez flew to Australia in April 2011, for his surgery in May. Both mother and son stayed at the Children First Farm in Kilmore to acclimatise before journeying to Adelaide.
The Australian Craniofacial Unit in South Australia and Children First established a relationship in 2007. Since then, medical specialists, headed by Professor David David AC, and a passionate and dedicated team of volunteers have provided expertise and support to children and their parents when they are in Adelaide. Sharon Murdock, who co-ordinates the volunteers, emphasised how important the personal approach to a child’s care is, both inside and outside the hospital.
“Elsa and Martinho came from a very small village, did not speak English and didn’t understand Western culture. It was a very frightening and isolating experience for them to be in Adelaide,” said Sharon. “We always try to connect the children and parents with their local community and in Martinho’s case, we were very fortunate to have the support of the local Timor-Lesteese Citizens’ Association.”
Dedication, compassion and support
“Our volunteers meet the child at the airport, attend every medical appointment, visit them in hospital, take them on outings when they are outpatients and generally try to be like an extended family while they’re in Adelaide. It is often a very hectic time when we are looking after a family here. It’s totally full-on and is both physically and emotionally tiring, yet incredibly rewarding. You know you are doing something that truly makes a difference,” she said.
In an operation lasting about three hours, Mark and his team removed the large protrusion from between Martinho’s eyes, replaced the bone and repaired the layers of skin, leaving him with a new face that would no longer provoke unkind taunts from others because he looked ‘different’.
Success through a holistic approach
“When we succeed with children like Martinho, it’s because we have a good team, people we can rely on to do what’s required, whether in surgery or in the important pre and post-operative care,” said Mark. “It’s essential that ours is a holistic approach to the care of a child. We know that the volunteers and Children First will ensure that a child is being treated like a human being and that they will be supported with all the huge adjustments they experience – being away from home and going through an operation in a strange and often overwhelming environment. We are in essence, one big team – and the child’s family while they’re in Australia.”
Martinho returned home with his ‘new’ nose in 2011.